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Joined 2 years ago
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Cake day: June 3rd, 2023

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  • Oh, I most definitely love my kids. Seeing their thought processes always makes my day.

    But…I’m in exceptional circumstances. My son lost bowel and bladder control 2y ago (tumor on his spinal cord). Had to live in the hospital a year. Took its toll on our now 9yo daughter…

    And now, my son is STILL used to being woken up every couple of hours for blood pressure checks and who is also awoken at that point? Yep—me.

    I don’t remember the last time I woke up feeling rested.










  • Add my stories to your list.

    My 3 yo son got diagnosed with Ewing’s Sarcoma and had surgery to remove a chunk of his spinal cord (that’s where the tumor was). He finished his first round of chemo and was scheduled to do some in-patient PT at a facility 0.2 miles away from the hospital he was in.

    • Ambulance ride duration: 30s
    • Ambulance cost: $6000
    • Insurance coverage: $500

    I straight up said “send it to collections. I don’t care. My son has cancer.” They fought for 6 months before going down to $250. I gave in.

    Another: There’s a medication you take to cause your marrow to produce white blood cells quickly (the downside is that your bones feel like your burning—at least that’s how my son described it at 3 years old). This medication saves money in the long term since it means fewer ER visits for a cancer patient.

    Coverage denied. Every. Time. Appealed every time, and got it covered. I probably spent close to 20 hours on calls & on hold just to get it covered for each treatment (~50 weeks I think?).

    I make decent money (by my area’s standards) have very good insurance through my work, too. Despite all that, I had to dip into retirement & college funds to pay for various treatment. Hit out of pocket maximum every time and they always find something to deny.

    It was fucking exhausting. Still is with ongoing issues and regular scans. He’s clear (so far) but man, fuck paid health insurance.